Thursday, November 10, 2005

So I write this wonderful email to my family about how I think my seizures are fading away, because I had been without medication for about two days, and I'd had no seizures. I felt it weakly yesterday afternoon, so I took a dosage to be on the safe side.

Talk about speaking too soon.

Almost right after I sent the email it starts getting worse. It abates for a little while, and Aparna and Vinod are here. I go into my room to get my computer, and next thing I know, I'm flat on the bed, groggy, dizzy, and almost feeling amazingly drunk. I heard voices-- I recognized them as Aparna and Vinod, but couldn't make out what they were saying. The next hour or so was pure hell. My entire body was too exhausted for any movement at all, and they kept asking me questions that I couldn't answer. (Are you okay? Do you want water? Do you want us to take you to the hospital?) On top of that there was a wave of nausea and a splitting headache and it felt like it was all old-people-y where they can't utter out those last few words. Or like when someone dies in a movie. ("The key to the treasure is found in... *OLD DUDE CROAKS*)

Anyway, I was told later that after going in my room, I seized for 2 minutes straight. In 10 years, that's probably the longest I've ever seized. The average is 30 seconds to 1 minute. But 2? Never before. Which is why last night was one of the shittiest nights I've ever had. Apparently my body decided, "Oh...so you think you can pull this whole thing off with no medicine and pulling the plug that easily? I'm gonna show you what happens when you go without meds for 40 hours..." And BOOM. On the floor.

Good news out of all of this. I'm alright. Didn't hurt myself, and I had two wonderful people who were here to take care of me. Aparna was on a medication last night that made her drowsy, so just so that she wouldn't fall asleep, she sat in the corner to make sure I didn't seize.... the entire night. I happened to wake up at 3 and told her to go to bed. Wow. Loving people. All around. All one can hope for.

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